Happy Thanksgiving

Well, here we are Thanks giving. We are Thankful Jimmy's MRI of the brain was the same. Stable. No tumor growth. We took a sigh for a little while until, they told us that his brain damage from the tumor may be whats causing the problem with his moods. He has been skittish and aggitated. The problem most likely is in the tumor bed. The cisterna magna. Inside the cerrebellum. This area is prominent, which means its larger. Spinal fluid drains thru it ok but there is just a space............In kids with Joubertte's syndrome and Dandy Walker syndrome, where they are born with mal-formations in this area, behavioral changes are evident too. (The same things Jimmy experiences. How the kids get to this point is different but the result is the same). So, its pretty much brain damage and we knew that he had some. But, the realization that it is affecting him more as he gets older is sad. He will need a mood stabilizer. Some type of drug to keep him on an even keel. There are so many but as one nurse put it, we tred into uncharted territory now. He may have to do trial and error before we find the right drug or combination of drugs. So onto life now. He is on ativan for now to kind of keep him nicey nice. But its a temp. thing. He is most aggitated when he cant communicate to us what he wants or needs, or he's scared, or he is ill, or in pain. So, we have to watch him closely to help understand him. He is still so sweet and I love watching his eyes wide open and mouth open when he watches tv with us in the evening. His fav. blanket draped over the top o his head guarding his ears. We love when he gets sleepy and his eyes droopy and he drifts into sleep. He is so peaceful. His little mind resting. His ear (the one he had problems with over the summer) is acting up again. Looks like its infected again, so we started him on the ear wash and drops. This could be bothering him too, so we jumped on it, as soon as we saw it was ozzing again, we called the Dr. So, all in all thats about it. I'll be cooking here, so must go and organize my things for the big cook off. :0) May everyone have a blessed and safe and Happy day. Love, Lin N Fam